Six programmes, one connected mission

Awareness & Education

Lupus cannot be diagnosed early if no one has heard of it. We run public campaigns, community education sessions, media engagements and school and workplace talks to increase understanding and challenge the myths and stigma that keep people silent.

We have been privileged to have lived experiences featured on national media including Citizen TV, Nation TV and KBC, which are Kenya’s major media stations.

Patient Support

We connect people to peer support groups, psychosocial support, practical assistance and reliable information. Support groups run across our Kenyan chapters, and members connect across the continent.

For many people, the support group is where they first meet someone who does not need the symptom explained to them.

Advocacy & Policy

We work to ensure lupus is recognised as a public health priority, and that patients have a seat at the table where health policy, financing and insurance decisions are made. That includes engagement with the Social Health Authority and other national bodies.

Research

Africa should not have to rely solely on evidence generated elsewhere. We document lived experience, contribute patient voice to research, and work toward an African evidence base that reflects African realities.

Health Professional Engagement

Delayed diagnosis is often a recognition problem. We engage clinicians, nurses, laboratory professionals and community health workers so that lupus is considered earlier and referral pathways are clearer.

Community Outreach

We take lupus awareness and screening conversations into communities through chapter activities, hospital visits, wellness days and partner events, reaching people who would never otherwise encounter the word lupus.